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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Monday, April 2, 2012

EGD day and Biopsy Results!

March 28
5:30pm Doug comes home from work and we load John and the two dogs into the car and head for Greenville, SC. We have to be at the hospital by 7am for John's endoscopy.
9:00pm Check into the hotel and try to get John to go to bed. Doug runs out to get the two of us some Taco Death.
11:00pm Doug and I go to bed.
March 29
2:00am I'm still awake staring at the ceiling
4:00am the dogs start barking at sounds outside our room
6:00am time to start getting ready to go, walk the dogs, shower, pack the diaper bag.
6:30am grab some Starbucks and make our way to the hospital.
7:00am check into the out patient surgery wing
 John in the room. Waiting for them to come get him for his scope.

8:30am The anesthesiologist comes to get John and take him back to do the endoscopy.
8:35am Doug and I pace the waiting room
9:00am We are taken back to see John. He is awake and fussing but calms down as soon as he's in my arms this time.

my sweet boy waking up from anesthesia
9:45am We are back in the car and headed to the hotel to get the dogs and head home!

John did amazing this time compared to last time! He didn't have any problems throwing up, he didn't fight me or push me away. And he was very alert for the rest of the day. Dr. Markowitz came back to talk to us before leaving and said that he would be out of town the next week but that he would take some time to check on John's results and we would get them back by Wednesday or Thursday of the next week.

I just got a phone call!!!

John's biopsy showed.....

That means his disease is currently in remission!! 

We are now waiting on the allergist to call us to set up an appointment to do patch testing. Patch testing will help us narrow down our list of foods that have a high chance of being safe for John to start food trials with. EoE kids have delayed reactions to allergens so the prick test alone isn't enough and we don't want to go into food trials blind. We are so incredibly excited to start re-introducing foods into John's life!! 

1 comment:

  1. This is such amazing and fabulous news! I am so happy for you, Margie, and for John! I hope that this continues and you can move on from here, incorporating more and more foods into his diet. John has an amazing little smile and a great attitude, and I know he is going to be just fine! Praise the Lord for such wonderful news!