John's OT has started combining his Tuesday therapy with another little boy to see if that helps. The first session did not go so well but we are hopeful.
|One week into the trial and NO SYMPTOMS!|
John LOVES the sweet potatoes now! As long as I sweeten them.... A LOT. :)
I'm okay with that as long as he's eating them. He was eating up to 4oz a day, willingly, with a spoon. No more hiding it in his bottles.
We've had to push the pause button on the sweet potato trial.
John has been really stressed out this week because Doug's work schedule changed. He is now home in the mornings but not around to bathe and put John to bed at night.
John has become very clingy, not sleeping well, not wanting to work in therapy and more autistic tendencies are showing themselves. He's rocking more, now even when he's standing he's rocking, or I guess I should say swaying, from one foot to the other. He flaps his hands near his face when he's scared and he's zoning out more when he spins the wheels on his cars. We are working on helping John transition through this change as easily as possible but it's so hard to see him effected so much by something seemingly so small, like this change in his schedule. I'm sure he'll be adjusted, just in time for Doug's schedule to shift again...
I will try to do better in keeping you updated on food trials! I didn't realize it had been so long since I updated!!
So, now I want to hear from you!
I'm thinking about doing a vlog next and want to answer your questions!
Ask me anything about EoE or our life living with out food and I'll try to answer them all in my vlog!