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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Thursday, February 2, 2012

blood work and weigh in

John's appointment with the GI Specialist was yesterday and while he really didn't tell us anything new he was able to give us the results of the blood work the allergist did to re-test the negative results from the prick test.
As we suspected, even though it didn't show up on the prick test, John is also allergic to soy. So that's six foods on the 'no go' list. Milk, Soy, Wheat, Eggs, Beef, and Corn.
That leaves A LOT of foods to chose from when starting our food trials and tells us know what to save for the end too because with EoE he might react to one food this month and not react at all the next month. So there is a small chance I suppose, from what I've read, that in a few years one or more of those six foods might be acceptable. But also one or more of his 'safe' foods may no longer be safe. It goes both ways. It's not predictable like normal food allergies and his body doesn't react to the offending foods the same way either.
The GI Specialist suggested that we introduce rice cereal back into his diet before his scope which surprised me and Doug. I plan on talking to the nutritionalist about this before we do it but I guess at some point, regardless of how John's original pediatrician was, I'm going to have to learn to trust his Doctors.
We are scheduling another scope for some time this month and John will get one every three months while we do food trials. I will write another post on food trials, I know I said that last time!
So, the game plan now is at least 8 ounces of 1.5 cal/ml formula, at least 14 ounces of 1 cal/ml formula, 1 feeding of Nutra, and one of rice cereal every day. Got to chunk that baby up!
And now the big news!!
Yesterday John weighed in at ..........

18.2 lbs !!

After his scope results come back all clear (cross fingers) then we will talk to the nutritionalist and the speech therapist and get going on the food trials and his therapy! 

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