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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Sunday, January 29, 2012

Allergy Test

On Thursday we had an allergy skin prick test done. They tested him for 22 foods.
Wheat
Corn
Oat
Rice
Rye
Milk
Egg
Beef
Chicken
Turkey
Tomato
Potato
Green Peas
Soybean
Peanut
Walnut
Almond
Peach
Apple
Pear
Banana
Cinnamon

Out of all 22 he only reacted to 5! Wheat, Corn, Milk, Egg, and Beef. They sent his blood out to a lab to test these foods another way just to be sure because apparently the skin prick test is not all that accurate or reliable on a child John's age. Either way we now have 5 foods that are defiantly a NO GO. We will know more next week on the other foods.



We see the GI Specialist on the 1st and he will schedule another scope. IF that comes back clear we can start on food trials based on his allergy test results.
We introduced Neocate Nutra to his diet on Thursday. He really enjoyed it and kept it down the first day. Then on Friday he started to show symptoms again (ie; gagging, spitting up) So we've not done that Nutra since Friday afternoon. This stuff is supposed to be hypoallergenic meaning that all the proteins that cause the allergic reaction have already been processed out so while it is made with corn starch and corn syrup and John is allergic to corn he should NOT react to this product because his body does not need to process the offending protein. There are rare cases of children being allergic to the WHOLE food and reacting to Neocate brand products like Nutra and it is possible that this is what we are dealing with. Or it could be that we have something else going on with John that has yet to be diagnosed. All of this will be addressed with his GI specialist and Nutritionalist on Wednesday.
As of his last weigh in, on Thursday, he was at 17 lbs 15oz! Growing at 6 grams per day which is the average rate of growth for kids his age!! It's not the catch up growth we need but it is a HUGE step in the right direction!
We are all coming down with colds in the Hemme Haven right now and I hope that this wont set us back any with John's progress but today he has only eaten 12 ounces and every single ounce has been a battle along with gagging and spitting up.
I will post again after our appointment on Wednesday.

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