About Me

My photo
This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

Grab my button!


Monday, February 27, 2012

We're in!

We had a great weekend! It was so relaxing and I got to take a ton of great pictures (about 500 of them!)! It was just what we needed. To take some time away and not think about doctors and hospitals and tests. To have fun and live life. I think a lot of the time we get so busy surviving that we forget to LIVE! Don't let that happen. Take a step back and breath every now and again and remember that this is our one life we have to live, so don't just survive, live your life and enjoy it!

John has been eating well and the steroids seem to be working because his vomiting has decreased but we are still experiencing a lot of gagging and coughing a long with the occasional vomiting. I can't understand this because John is solely elemental! He is not being exposed to any allergen that we are aware of food wise. That makes us wonder if he doesn't also have some environmental allergies that are causing him to have EE flair ups. I hope we will get some answers soon.
We got some great news today too! We got into Greenville Children's Hospital to see Dr. Markowitz! We will be going to Greenville SC on the 21st of March. We were expecting a wait time of at least 4 weeks if not longer since we wanted to see Dr. Markowitz (from now on referred to as 'Dr. M.'). We are so thankful that we only have to wait 3 weeks!

No comments:

Post a Comment