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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Monday, December 16, 2013

Guess Who's Three?!

Yesterday was a big day at the Hemme Haven.
On December 15, 2010 at 1:53 am John made a very dramatic entrance into the world.

Birthdays, just like the other major holidays, are a bit tricky for us since they are traditionally centered around food. We have to be creative to make it as special as possible in  food free ways.




 I admit, we go a little overboard on presents to compensate but our plan is to make lots of great memories too. This year our plans got canceled due to the weather but we had fun anyway.



We spent the day watching Disney's Planes (twice!) and sitting in the floor seeing how many different track designs we could come up with using John's new Thomas Train set.





John got to face time with his Auntie Em, Cousin B and E, and then Grandma B. Grandma H and Great Grandma called to tell him Happy Birthday and then he spent about two hours lighting and blowing out the candles on his Leap Frog birthday cake.











 He was having such a good time that he only took an hour nap which for him, is about 3 hours short!




In other news, I've still been unable to successfully buy an avocado that wasn't brown and grey on the inside so we've put off that trial yet again. John's caloric intake is low by about 200-400 calories. He's lacking fats too so we've decided to trial....
....drum roll please....


Yep. Grapeseed Oil. 
We are adding 2 teaspoons to every 6 ounces of formula and drizzling about a teaspoon or so into each jar of food John eats. The goal is at least two tablespoons a day. One tablespoon is 120 calories!!
Grapeseed oil is an excellent source of good fats and antioxidants.
We are trying to get a scope scheduled for next month since we are coming up on a year since we scoped last. Food trials have not been going well. We've only been able to add peaches since our last scope and so far grapeseed oil seems to be going well.  

Feeding therapy is going really well even though we are starting with a new therapist again. Ms. C was really good and we hate to see her go but she had other obligations. Ms. J comes to our house which is fantastic. No more having to lug bottles and spoons and jars and bowls and formula to and from therapy every week and end up forgetting something. Now everything John could possibly need during therapy is right there and I know it's all clean and safe for him too. I feel like Ms. J is going to be a good match for us and I'm excited about working with her. 

I have big hopes for next year. Lots to look forward to. I won't be blogging again until after John's next scope sometime in January or February. It's time to enjoy the holidays and my family. I hope you all have a Merry Christmas and a Happy New Year! 
Thank you for reading and sharing!! 

1 comment:

  1. Happy Birthday! Beautiful boy, wonderful presents (Thomas is a hit with us too) :-) Loved the cake idea… Happy New Year! Wishing a healthy, happy, successful year! Noa

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