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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Tuesday, November 19, 2013

Avocados and Flat Feet

Last time I wrote, we had pulled all new foods and John was asking for carrots all the time.
Since then, we've decided that it was the carrots making John throw up and pulled them for what I think is the third time. Thankfully he hasn't asked for them either, so I think on some level he knew they were making him sick. I cannot imagine John asking for a food and me having to tell him he can't have it. So far that's not happened, but I know it's inevitable.
I can't believe he's almost three!!
We are still going with peaches, and so far, no symptoms that we think are caused by the peaches. They are still not on our "safe" list though, since we haven't had a clear scope with them yet.
Right now we are still trying to decide if we want to scope with just peaches or try to find another few foods that he will enjoy eating. 
What's the point in having a safe food that he refuses to eat? 
For example: Turkey. It's safe for John, but he won't have anything to do with it. So what good is it doing him or us to know that it's safe?
We've officially trialled all of Beech Nut brand's baby food that we can find in the grocery store, so now we are going to have to start getting creative, or John's going to have to make that leap into eating finger foods and age appropriate textures.

John seems to be more interested in eating things. When we went to the store last week, I handed him an avocado and told him what it was. He took it, looked at it, told me what it was, then proceeded to put it in his mouth!! My first instinct was to stop him, but I stopped myself and just watched him to see what he would do. Right when his teeth touched the avocado, he stopped and handed it back to me, but WOW! He's never, EVER done anything like that before! Then, later at the store, I handed him a bag of dried peaches and he stuck the corner of the bag in his mouth!! 
He's been feeding himself with his spoon for a week now, and drinking out of a straw. He's blowing me away! I'm so excited for him and these huge steps he's taking. He's being very brave tackling this oral aversion.



In other news, John's physical therapist decided that John would benefit from small leg braces called SMO's (Supra-Malleolar Orthosis) They are for people with flat feet. John inherited his Dad's extremely flat feet. He also has low tone in his legs and these braces will help support his ankles and promote proper form while he develops those muscles. 

We picked up the braces today and for the first few minutes after putting them on John walked around like a robot with very stiff legs but after a few mins he was walking around like they weren't even on. 
He's worn them most of today and has done well with them. He even jumped on the trampoline at therapy today, which is something he normally will not do. The braces fit into his Chucks so we didn't even need the special shoes that they originally told us we'd need. I was very happy about that. John loves his Chucks and so do I! They've become his thing, like his Uncle, and that makes me happy. 


2 comments:

  1. Wow, it is a HUGE step that he is putting things even close to his lips. I am so happy you could let his try the avocado. I misunderstood about the shoes. I did not know that they were for flat feet. I have very high arches so I do not where Doug inherited the flat feet. I am so grateful they don't seem to bother him. We are making great progress.

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  2. Very inspiring post - I fully understand what a brave big step he took in putting food near his mouth and especially impressed with the use of the straw! WOW! I have become attached to this beautiful happy super-boy.
    Thank you for your answer regarding the tooth-brushing! What is the "safe toothpaste" you mentioned?
    I would love to comunicate with you personally if that is ok. my e-mail is noamotro at gmail dot com.
    Thank you very much and good luck with the new braces and the trials!

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