Did you know that there are more than 10 words for MILK, or milk products, when it comes to food labeling?? Some of them are, casein, diacetyl, lactalbumin, lactoferrin, lactose, and tagatose. John is dangerously allergic to milk so I need to know how to recognize when there is milk or a milk based product in anything that might come into contact with him. This includes lotions, soaps, tooth paste, even medication!
Flu shots have milk and egg in them. I didn't know that. Certain antibiotics also have food products in them.
Lucky for me I know a wonderful group of ladies that I am proud to call my friends that have been at this a lot longer than me and have done most of the hard work of finding out what medications are (or have the highest probability) of being safe for John.
One product that, I think, is universally safe for EoE kids is sugar. One of the biggest things I swore I would do when I have kids is MAJORLY limit how much sugary and artificial crap they ingested. Only to find out that those things might be the only safe things my son can eat for a long time. A birthday cake made out of sugar cubes? YES! Eating sugar packets and ice chips at dinner with the family when we go out? Absolutely!! Home made sugar lollipops (because dumdums have corn syrup in them) made with artificial flavorings and colors so my son can experience flavors of foods he's allergic to? You bet!
Whatever it takes to make sure my son is safe, happy, and healthy.