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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Friday, March 16, 2012


It's been a long time since I've posted. That is because I've not had anything to post about!! It's horrible but we are just sitting around waiting now. We are still doing the total elemental diet and yet John is still having retching, coughing, gagging, vomiting episodes! They are much less frequent but he should not being having ANY EE symptoms at all at this point. I really am hoping that Dr M. can give us some answers. Maybe John has some environmental allergies that are affecting his EE?

Also we are fighting again with getting him in to see an occupational therapist to work on his motor skills. They only want to work on his eating but we do not have any acceptable foods so there really isn't anything they can do in that area. I don't know why they don't want to work on his walking, talking. and holding his own bottle. Just to name a few! We have another weigh in on the 20th and our long awaited appointment in Greenville is the 21st!! Getting close now!!

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