Wednesday, September 18, 2013
in the loop
Just a quick update to keep everyone in the loop.
We were supposed to scope Monday for chicken, peaches, carrots, and squash but John started to throw up a lot. I thought it was just a bug or maybe sinus drainage making him throw up but he never had a fever and only threw up after eating squash.
We had also introduced some new things that are supposed to be safe for kids on an elemental diet like grape koolaid and dumdums (again).
I talked to Dr. L and he agreed that it sounded like John as having a reaction to something.
Since we added the koolaid, the suckers and the squash all around the same time it's hard to tell which one is causing the vomiting.
Either way we've stopped all of them and Dr. L agreed that since he's having these symptoms he is more than likely having a flare and putting him under sedation to do a scope would be pointless.
We will schedule a scope for a month out from when John stops having vomiting episodes.
We decided to up John's steroid to twice a day since we've been having such a hard time finding four more foods. We are down to three foods for this scope and plan to keep it that way.
John started feeding therapy with a new therapist that specializes in feeding (FINALLY!) and he's doing so well! He is also working with a new physical therapist that he LOVES!
We are all adjusting well to the new house and new routine.
I started taking a sign language class and am teaching John and Doug and John is picking up on it so quickly.
It's adorable watching him try to fingerspell his name.
He makes me so proud and so often I find myself looking at him and unable to believe that he's really mine.