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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Wednesday, May 15, 2013

National Eosinophil Awareness Week and Eat Like Me Challenge

In honor of Eosinophil Awareness Week and on behalf of John, Doug and I are challenging all our friends and family, and now you, my blog readers, to eat like John for a week (or as long as you can).
John can eat turkey, sweet potatoes, green beans, plums/prunes, and we are trialing peaches and golden yukon potatoes.
I'm asking that you take some time to find out what it's like to live with this disease. Can you do it for one meal? One day? Three days? The whole week?
No seasoning, no spices, no other ingredients at all. 
John doesn't have the choice. He doesn't get to quit, or take a break, and if he cheats he get's very, very sick, and will likely pay for that cheat for days, weeks, or months.
I'm asking you to spend some time in his shoes.
There are lots of kids out there who have even less safe foods. I'm not even asking that you drink his formula, which he has to do to get enough calories and nutrients each day. He has to drink around 30 ounces of Elecare Jr every day and believe me, I've tried it, it doesn't taste that great and it leaves a funny feeling in your throat. I could manage to drink a little of it but I can't imagine having to drink that much of it every single day. 
It must get boring to only be able to eat and drink these certain foods day in and day out. All day every day. I'm having a hard time imagining limiting myself to these foods for a week!!
I bet that even if you challenged yourself to only eat YOUR FAVORITE five foods, you wouldn't last long.
Limiting yourself to a restricted diet is extremely hard.
When you feel like you cant do it be thankful that you have a choice.

So, will you join us?

1 comment:

  1. Oh my goodness. I'm reading through your blog and just appreciating it and feeling for you and your family! I feel like I'm reading into my future, too! I'm the one who commented on your Instagram earlier. We have a lot of similarities.... We both have one son, who has EoE, they both wear cloth diapers, and we live in SC too!! Although not for long. So crazy. I'm thankful I found you and I hope we can be a support to each other! It's nice to know someone who has been through/is going through what you are. I think I've been kind of in denial when I first found out s I didn't blog about it a lot but you have inspired me to embrace it and blog about it more and increase awareness. I'm also just kind of realizing how badit really is, (just had our second bad scope)... But I'm ready. Thank you!!!!!!