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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Tuesday, April 9, 2013

Scope #5

John has really been enjoying his new foods. Prunes are his favorite followed closely by green beans.
after an early morning self feeding of prunes
We've been trialing sweet potatoes, green beans, turkey, and prunes for 5-10 days each and it's time to have a scope. The more foods that are added between scopes the more confusing it becomes if the results come back with high numbers. Some scope between every food, some trial 2-5 foods in between scopes. We are going with four right now since John needs 8 safe foods to go to Marcus. 

Dr. L. does scopes on Monday which is nice for us because we can spend the night before in Atlanta with out Doug having to take off another day of work. 
So we decided to head to Atlanta on Saturday and spend the weekend there having some fun. 
We went to the zoo on Sunday.

And played in the photo booth.

We ate some great food and played in the yard with the puppies at Aunt Jeannette's house.

John's breakfast

our breakfast (biscuits not pictured)

I have no idea what he is doing in this picture above but he was all over the yard just loving the nice warm weather and room to explore.

He loves his Abigator (Abigail)

We made some memories and enjoyed ourselves thoroughly.
Monday morning came quickly and we had to get up at 5:30. Even being in Atlanta we still had to leave the house an hour early to get to the hospital on time. John, being so young, was the first scope of the morning at 7:30am. We arrived at 7:00 with a sleepy and hungry little boy.
When they took him back he was so brave. He didn't cry or anything. They said he went to sleep very easily and quickly. The scope went well and visuals were good. All very good things to hear.

It never get's easier letting him go back there and sitting in the waiting room. He was only gone for about 15 minutes but it's a long, and stressful 15 minutes.
He woke up great and only cried when the nurse pulled the tape off his IV to remove it. He's such a trooper.

We went back to Aunt Jeannette's house to rest for a little while and pack our stuff to head home. 
John was pretty groggy but happy. 
getting some breakfast after the scope

*yawn* still sleepy.

We expected the results later this week but John was running a low grade fever this morning so I called the GI office to let them know. When Dr. L's nurse called me back she said she had some good news...

John's biopsy results were back already!!!
She hadn't even told Dr. L yet!


This is better than we hoped for and the best it could ever possibly be!
John is in remission and this is his first clear scope with food!!

Now, it's time to start more food trials! We will scope again in two months with four more foods.

White potato

Since we are in the middle of moving I may not start the next trial until we get moved but I've not decided yet. 
We are obviously over the moon excited!! We no officially have FOUR safe foods and are well on our way to EIGHT!
Thanks for reading!!

1 comment:

  1. That is so exciting! Good luck with the next round of food trials.