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This is a blog for my son. He has a rare auto immune disease that causes his body to attack food like it would a virus making it impossible for him to eat most any foods with out getting very very sick. This is a record of our ups and downs, doctor visits and procedures. Our trial and error life of finding out what foods are safe for our son to eat and eliminating the ones that are not from his life.

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Wednesday, March 20, 2013

Green Beans

Yesterday we started the green bean trial. John has to eat at least 3 bites of green beans every day for the next 10 days while also continuing to get at least 3 bites of turkey. 
He has to have both of these foods in his system when they take biopsies on April 8th. It seems like it will start to get harder the more foods we trial in between scopes. 
Not only because the results could potentially be confusing but making sure he eats enough of each food every day gets harder the more we add. 

I was ready for another battle with the green beans but decided to see what he would do with green beans alone and not mix them with anything the first time. I figured that they would have a similar texture to sweet potatoes and he would only have to get passed the new flavor. Unlike the turkey where he is having to over come the texture and the new flavor. 

John blew me away. He willingly ate three bites yesterday and four today! He would have kept going today but I wanted to make sure he got plenty of turkey too so I gave him four bites and then mixed his sweet potatoes and turkey in with the bite or two that was left of the green beans in the bowl.
He ate it all!
I was dancing around and cheering and lots of high fives were given! 

8 more days with no symptoms and we will only need the scope to confirm that we can add green beans and turkey to our list of safe foods!!! 
I am waiting for an available appointment with a dietitian to help me make sure that while we are trialing food that John continues to get the correct amount of calories every day. With his tummy being full of trialing foods he cuts back a lot on formula. We need to make sure that we keep a good balance. 

All in all things are looking really good! 
Thanks for reading!!


  1. Margie this is OUTSTANDING! I know you are probably sick of hearing how proud of you I am, but you have to hear it again. I'm so thankful that God put John in your family. You love him so well.

    1. Aunt Kelly, I will never get sick of hearing that! :) It makes me happy to know you think so highly of me. Thank you for leaving a comment too! Love you!